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Cancer experience survey for patients under 16 now open

NHS England has launched the Under 16 Cancer Patient Experience Survey, to better understand the impact of a diagnosis of childhood cancer on the emotional health and wellbeing of the child and their family, both during and after treatment.

The survey builds on the work of the National Cancer Patient Experience Survey, understanding that cancer care pathways and care priorities for children and young people often differ to adults.

The survey has been running since 2020 and the results provide national-level insight into the experiences of children with cancer and their families and carers, and informs how the NHS delivers cancer services going forward. The results are used to assess performance both locally and nationally, to help identify priority areas for enhancing children’s cancer services. The aim is to radically improve the outcomes for children and young people affected by cancer.

The third wave of the survey is being implemented across England from April 2023. Children under 16 who received NHS cancer care during 2022 and their parents or carers will be invited to participate. They will be able to complete a paper questionnaire or an online version of the survey on any device.

Experience of care for people who use NHS services is extremely important, and the need for personalised care and treatment is well recognised. By contributing to the survey, young people and their parents or carers will help the NHS to continue to improve its services and better support children and young people living with and beyond cancer.

For more information on the survey visit